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Medical Papers
- Comparing The Effects
of Surgical Intervention, Chemical Intervention, and Compression Therapy
in Patients with Klippel-Trenaunay Syndrome.
From:
Matthew S. Nole, Baldwin-Wallace College.
- "Science,
Math and Medicine - Working Together To Understand the Diagnosis,
Classification and Treatment of Port-Wine Stains" by Martin Mihm,
Jr. MD; Linda Rozell-Shannon, M.S.
This paper was presented in Mt. Tremblant, Quebec, Canada in August
at the Controversies and Conversations in Cutaneous Laser Surgery
- An Advanced Symposium. It was met with rave reviews and presenters
encouraged all physicians to read this paper to better understand
the evolution of the diagnosis, management and treatment of port wine
stains. Permission to reprint or use this paper should be directed
to Linda Shannon at hvbf@aol.com
- Glaucoma and
Sturge Weber Syndrome – Some Facts You Should Know
By Linda Rozell-Shannon, MS, President and Founder of
the Vascular Birthmarks Foundation (www.birthmark.org). Medical Editing
by Dr. Aaron Fay of the Mass. Eye and Ear and VBF’s leading
eye specialist.
The purpose of this article is to provide some plain-language facts
for individuals affected by glaucoma, which is the most serious
eye problem of Sturge Weber Syndrome (SWS). Note: SWS is a condition
that involves 3 components: vascular malformation or stain of the
eye, skin, and the central nervous system. You can have eye problems,
even glaucoma, and not have SWS.
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Port Wine Stain Paper
(pdf)
Research Paper by VBF's PWS Expert, Dr. Stuart Nelson and Wangcun
Jia, Guillermo Aguilar and Dr. Guo-Xiang Wang explains the how dynamic
cooling is used to minimize skin damage during laser treatment of
vascular birthmarks.
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Psychosocial
and Emotional Issues for Individuals with a Port Wine Stain
http://birthmark.org/pws_strategies.php
2005 Vascular Birthmarks Foundation Port Wine Stain Conference
http://www.birthmark.org/
By Leslie Graff, M.S., C.C.L.S., VBF Developmental Specialist
- Simple things
you can do to manage KTS (Dr. Delfanian and Linda Shannon)
- Brazilian
Power Point Presentation On Vascular Birthmarks by Dr. Zach Calil
(Power Point - 7.5mb) (in Portuguese)
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Parent's
Corner
Information for Parents
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Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness
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What if the VBF earned a penny every time you searched the Internet? Now it
can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social
mission... every time you use GoodSearch, money is generated to support the
mission of VBF. Just go to www.goodsearch.com
and be sure to enter the Vascular Birthmarks Foundation as
the charity you want to support. The more people who use this site, the more
money we'll earn so please spread the word! Go
to http://www.goodsearch.com
If you think your child has a hemangioma Click
Here...
If you think you or your child has a port wine stain Click
Here...
If you think you or your child has a venous malformation Click
Here...
What if the VBF earned a penny every time you searched the Internet? Now it
can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social
mission... every time you use GoodSearch, money is generated to support the
mission of VBF. Just go to www.goodsearch.com
and be sure to enter the Vascular Birthmarks Foundation as
the charity you want to support. The more people who use this site, the more
money we'll earn so please spread the word! Go
to http://www.goodsearch.com
2003 Port Wine Stain Conference Videos and 2005 PWS Conference Audio CDs Available
2003 PWS Conference....4-PART VIDEO SET...now discounted from $69.99 to just
$29.99 PLUS $5.00 SHIPPING AND HANDLING This is an important addition to your
medical library and is appropriate for both physicians and those interested
in learning more about vascular birthmarks. Learn from the convenience and comfort
of your home or office. This set contains lectures from world-renowned medical
experts in the field of Vascular Birthmarks.
Please click here to place your order. (pdf order form) There are only a
few sets remaining. Hurry while supplies last.
2005 PWS Conference...3 CD Audio Series...is available for a donation of $49.99.
of which $30.00 is fully tax deductible. Listen to the incredible presentations
by world experts in the field of PWS, Sturge-Weber-Syndrome and Klippel-Trenaunay
Syndrome as they discuss the latest research and treatment information. This
presentation is the most current information you will find on this subject.
There is a limited supply. This set will be sent to you by UPS within two weeks.
To buy this set, click
here. (pdf order form)
Publications for Parents:
- VBF Vascular Birthmarks Brochure - Download and Print -
A comprehensive brochure describing all vascular birthmark types, syndromes
and treatment options. To
print, click here (you will need the Acrobat
Reader to view and print this document).
- Doctor Visit Survey Have you been seen by a doctor to assess
a vascular birthmark? Please click here
and complete our survey. This survey will be used to provide feedback to the
doctors about the information and treatment they provide to families affected
by a vascular birthmark. Complete your survey and mail to Corinne Barinaga,
VBF Director of Information Services, 17309 NE 29th St., Vancourver, WA 98682.
- Before you visit, email, or speak to a birthmark specialist, be sure to
read our Checklist for Parents!
- Port Wine Stain Leaflet (pdf) (Word)
- Hemangioma Leaflet (pdf) (Word)
- Psychosocial and Emotional
Issues for Individuals with a Port Wine Stain
- Simple things you can do to
manage KTS (Dr. Delfanian and Linda Shannon)
You will need Adobe's Acrobat Reader to open and print the pdf documents. If
you do not already have it installed, you can find it here.
You will need Microsoft's Word to open and print the Word Documents.
Parents' Stories
Do you have any suggestions to improve the services we offer to our VBF families?
Send us your comments and suggestions!
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