Expert's Corner

 

Ask the Doctor


The Ask The Doctor service of VBF Europe is provided on a volunteer basis by physicians who work with VBF. Please use this service only if you are unable to find the information you need at our website.

Ask the Founder


VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.

 

Babies with Birthmarks™

Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

New Research Out of Boston


Dynamic Cooling Paper by Dr. Nelson and Wangcun Jia


Arterio-venous Malformations Powerpoint Presentation


PWS paper by Dr. Mihm and L. Rozell-Shannon


SWS Glaucoma Facts by L. Rozell-Shannon and Dr. Fay

Test for Birthmarks

Psychosocial and Emotional Issues for Individuals with a Port Wine Stain

Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

Ulcer Care and Treatment (pdf)

Find a Physician

Norway
Sweden
Dr. Anita Trailius
Dermatologist
University Hospital Mulmoe

Holland
Jan Kromhout, MD PhD
Hospitaalweg 1
Flevo Ziekenhuis
Almere
Holland
1315RA
phone: 0031 36 5398701
In our centre the surgeon, the plastic surgeon and
the pediatrician work together in the treatment of vascular malformations.
If LASERtreatment or embolisation is indicated, patients are referred to The
University Hospital in Amsterdam


Finland
Netherlands
Prof C.M.A.M.van der Horst
Plastic surgery Academic Medical Centre
Po box 66220
1100AZ Amsterdam
The Netherlands-, email c.m.vanderhorst@amc.uva.nl, tel 020-566297.


Denmark

France
Dr. Odile Enjolras
Groupe Hospitalier
Cochin Hospital Lariboisiere
Paris France
Phone: 33 14 9958 359
Email: odile.enjolras@lrb.ap

Greece
Dr. Stavros Tombris
Greece
Facial Surgeon who operates on children and adults with vascular birthmarks and tumors or the head and neck area. Dr. Tombris spent several years studying in Boston, Mass.
stavros@stavrostombris.com

Belgium
Laurence M. Boon, M.D., Ph.D.
Center for Vascular Anomalies
Division of Plastic surgery
Cliniques universitaires St Luc
Avenue Hippocrate 10
B-1200 BRUSSELS
BELGIUM


Dr. Romain Vanwijck
Service De Chirurgie Plastique
Cliniques Unversitaires St. Luc
Brussels, belgium
Phone: 32 2 764 14 03
Email: vanwijck@chiruc.ac.be


Germany
Prof. Dr. med. H.-Peter Berlien
Chefarzt der Abteilung für Lasermedizin
Tel: +49-(0)30-2506-902
Fax: +49-(0)30-2506-923
Email: lasermed@elisabeth-klinik-berlin.de


Dr. Dirk Loose
Center for Circulatory Disturbances and Vascular Defects
Bahrenfelder Steindamm Nr.
109-111, 22761
Juergensallee Hamburg, Germany
Phone: 011-49829610
Email: info@gefaesszentrum.de
0049-40-46- 00 39-0 (phone)
Serving: Europe, China, South Korea, New Zealand, Singapore, Egypt, USA, and Canada.
Sponsors annual gathering for families affected by vascular anomalies.

Susanne Astner M.D.
Charité University Medicine Berlin
Department of Dermatology
Charitéplatz 1
Germany
0049-30-450-518039 for appointments

Spain
Dr. Ignacio Sanchez-Carpintero, MD PhD
Unversity Clinic of Navarra
Medical School of the University of Navarra, Spain
isanchezc@unav.es


Italy

England
Dr. Richard Barlow
Dermatogoligst
St. John's Institute
St. Thomas Hospital
London, England


Dr. Karen Healey
St. Thomas Hospital
London, England
Att: Angie, Dr. Healey's Secretary 001144-1232-618-737 (phone) 001144-171-922-8186 (fax)

Alderhey Childrens Hospital Eaton Road
Liverpool

Beginning in January 2009, Dr Waner will be visiting Liverpool on a regular basis to see patients and perform sugeries, working in conjunction with Mr Liew Consultant plastic surgeon.

We have a large vascular birtmarks service including a multidisciplinary team and a large vascular service.

Patients may contact:

cath.gorst@alderhey.nhs.uk

 

Scotland
Ireland
Dr Alan Irvine MD FRCPI MRCP
Consultant Paediatric Dermatologist
Our Lady’s Hospital for Sick children
Crumlin
Dublin 12
Ph + 353 1 428 2532
Email: alan.irvine@olhsc.ie
Physician referral to rona.oreilly@olhsc.ie P: + 353 1 428 2532

Dr Rosemarie Watson MD FRCPI FACP
Consultant Paediatric Dermatologist
Our Lady’s Hospital for Sick Children
Crumlin
Dublin 12
IRELAND
Phone: + 35352-428 2541
Email: rosemarie.watson@olhsc.ie
Physician referral to yvonne.thompson@olhsc.ie . Ph: + 353 1 428 2541.

Interests include haemangiomas and laser therapy. A monthly paediatric multidisciplinary vascular clinic (dermatology, plastic surgery, interventional radiology) is held at the children’s hospital above.


A multidisciplinary vascular clinic is also held quarterly at the adult centre, St James’s Hospital, Dublin and represented by vascular surgery, radiology, plastic surgery and dermatology. Access is through referral by family practitioner to Department of Dermatology, St James’s Hospital, Dublin or email: watsonsec@stjames.ie (Catherine Berry-Byrne).

 

Canada

Vascular Anomalies Clinics at Hospital for Sick Children in Toronto, Canada.

http://www.sickkids.ca/PlasticSurgery/What-we-do/Vascular-Anomalies-Clinic/index.html

The clinics for children with vascular anomalies at the Hospital for Sick Children in Toronto, Canada are as follows:

1. Vascular Anomalies Clinic (VAC).

This is a once-weekly multi-professional clinic and accepts all children with vascular malformations, providing comprehensive care and treatment. Selected patients with vascular tumours, referred from the Dermatology clinic, requiring invasive treatments are also seen.

2. Klippel-Trenaunay Syndrome (KTS) Clinic.

This is a once-monthly multi-professional clinic and accepts all children with Klippel-Trenaunay Syndrome providing comprehensive care and treatment. Selected patients are also seen in the Orthopaedic clinic.

3. Bone Vascular Clinic (BVC).

This is a multi-professional clinic held once every 2 months, dedicated to caring for children with joint disease from their vascular malformations.

All 3 clinics see children up until 18 years of age and, if needed, will arrange transfer of care after 18 years of age to an adult clinic.

The physician directing the above 3 clinics is:

Dr. Philip John

Clinic Director (Interventional Radiologist)

The Hospital for Sick Children

Toronto, Canada

Clinic contact information (for Vascular Anomalies, KTS and Bone Vascular Clinics):

Telephone: 416-813-5273

Fax: 416-813-6147

4. Dermatology Clinic

The Dermatology Clinic sees all children with hemangiomas and other vascular tumours.

The physician for the Dermatology Clinic is:

Dr. Elena Pope

Head, Section of Dermatology

Division of Pediatrics

The Hospital for Sick Children

Toronto, Canada

Dermatology Clinic contact information:

Telephone: 416-813-7384

Fax: 416-813-7055

Parent's
Corner



Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness


Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

If you think your child has a hemangioma Click Here...
hemangioma
If you think you or your child has a port wine stain Click Here...
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here...
Before and after of venous malformation

Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

2003 Port Wine Stain Conference Videos and 2005 PWS Conference Audio CDs Available

2003 PWS Conference....4-PART VIDEO SET...now discounted from $69.99 to just $29.99 PLUS $5.00 SHIPPING AND HANDLING This is an important addition to your medical library and is appropriate for both physicians and those interested in learning more about vascular birthmarks. Learn from the convenience and comfort of your home or office. This set contains lectures from world-renowned medical experts in the field of Vascular Birthmarks. Please click here to place your order. (pdf order form) There are only a few sets remaining. Hurry while supplies last.

2005 PWS Conference...3 CD Audio Series...is available for a donation of $49.99. of which $30.00 is fully tax deductible. Listen to the incredible presentations by world experts in the field of PWS, Sturge-Weber-Syndrome and Klippel-Trenaunay Syndrome as they discuss the latest research and treatment information. This presentation is the most current information you will find on this subject. There is a limited supply. This set will be sent to you by UPS within two weeks. To buy this set, click here. (pdf order form)

Chapters of the VBF

VBF
VBF Europe
VBF Spain
VBF Peru
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
VBF Poland
VBF Philippines
VBF Vietnam
Sturge-Weber Syndrome Community
SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks


Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, VBF Director of Information Services, 17309 NE 29th St., Vancourver, WA 98682.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Port Wine Stain Leaflet (pdf) (Word)
  • Hemangioma Leaflet (pdf) (Word)
  • Psychosocial and Emotional Issues for Individuals with a Port Wine Stain
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.

Parents' Stories

Read our Interview with Dr. Tombris!

Do you have any suggestions to improve the services we offer to our VBF families? Send us your comments and suggestions!