Expert's Corner

 

Ask the Doctor


The Ask The Doctor service of VBF Europe is provided on a volunteer basis by physicians who work with VBF. Please use this service only if you are unable to find the information you need at our website.

Ask the Founder


VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.

 

Babies with Birthmarks™

Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

New Research Out of Boston


Dynamic Cooling Paper by Dr. Nelson and Wangcun Jia


Arterio-venous Malformations Powerpoint Presentation


PWS paper by Dr. Mihm and L. Rozell-Shannon


SWS Glaucoma Facts by L. Rozell-Shannon and Dr. Fay

Test for Birthmarks

Psychosocial and Emotional Issues for Individuals with a Port Wine Stain

Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

Ulcer Care and Treatment (pdf)

Links to Information, Support, and Foundations

www.euromedicalsystems.co.uk

www.veilcover.com

www.patient.co.uk

www.colortration.com

Sturge-Weber Syndrome Community
P.O. Box 24890
Lexington, KY, USA
http://swscommunity.org

ANGEL FLIGHT EUROPE Angel Flight Europe is a charitable organization which arranges free long distance transportation in non-emergency medical situations. No fees are charged to the patient, the insurance company or any other entity for the transport. Angel Flight Europe serves the European Union and Switzerland.

MSN Vascular Birthmark Support Group A wonderful source of information and inspiration, the MSN Vascular Birthmark Support Group is for everyone affected by a vascular birthmark.

Birthmarks.com The premiere resource site and support group for information about birthmarks, port wine stains, laser therapy, and makeup and skincare.

Lex van der Heijden, PMP
President CMTC www.cmtc.nl
Bitterschoten 15
3831 PC Leusden
The Netherlands
CMTC is a Dutch based world wide operating non-profit patient organisation which supports patients and their families in all aspects concerning patients with the skin disease CMTC.

Changing Faces
The Squire Centre
33-37 University Street
London WC1E 6JN
Tel: 0845 4500 275
Fax: 0845 4500 276
www.changingfaces.org.uk
email: alisonr@changingfaces.org.uk

Parent's
Corner



Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness


Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

If you think your child has a hemangioma Click Here...
hemangioma
If you think you or your child has a port wine stain Click Here...
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here...
Before and after of venous malformation

Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

2003 Port Wine Stain Conference Videos and 2005 PWS Conference Audio CDs Available

2003 PWS Conference....4-PART VIDEO SET...now discounted from $69.99 to just $29.99 PLUS $5.00 SHIPPING AND HANDLING This is an important addition to your medical library and is appropriate for both physicians and those interested in learning more about vascular birthmarks. Learn from the convenience and comfort of your home or office. This set contains lectures from world-renowned medical experts in the field of Vascular Birthmarks. Please click here to place your order. (pdf order form) There are only a few sets remaining. Hurry while supplies last.

2005 PWS Conference...3 CD Audio Series...is available for a donation of $49.99. of which $30.00 is fully tax deductible. Listen to the incredible presentations by world experts in the field of PWS, Sturge-Weber-Syndrome and Klippel-Trenaunay Syndrome as they discuss the latest research and treatment information. This presentation is the most current information you will find on this subject. There is a limited supply. This set will be sent to you by UPS within two weeks. To buy this set, click here. (pdf order form)

Chapters of the VBF

VBF
VBF Europe
VBF Spain
VBF Peru
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
VBF Poland
VBF Philippines
VBF Vietnam
Sturge-Weber Syndrome Community
SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks


Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, VBF Director of Information Services, 17309 NE 29th St., Vancourver, WA 98682.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Port Wine Stain Leaflet (pdf) (Word)
  • Hemangioma Leaflet (pdf) (Word)
  • Psychosocial and Emotional Issues for Individuals with a Port Wine Stain
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.

Parents' Stories

Read our Interview with Dr. Tombris!

Do you have any suggestions to improve the services we offer to our VBF families? Send us your comments and suggestions!