Expert's Corner



Ask the Founder

VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.


Babies with Birthmarks™

Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

New Research Out of Boston

Dynamic Cooling Paper by Dr. Nelson and Wangcun Jia

Arterio-venous Malformations Powerpoint Presentation

PWS paper by Dr. Mihm and L. Rozell-Shannon

SWS Glaucoma Facts by L. Rozell-Shannon and Dr. Fay

Test for Birthmarks

Psychosocial and Emotional Issues for Individuals with a Port Wine Stain

Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

Ulcer Care and Treatment (pdf)

Welcome to the European Chapter of the Vascular Birthmarks Foundation, VBF Europe!

Every year in the United States, 40,000 children are born with a vascular birthmark, 85% of which are in the head and neck area. Statistics show us that the incidence is the same in other countries. These birthmarks include:

No one knows why vascular birthmarks occur, but treatment guidelines are changing.

Josie Moore, VBF Europe's Manager

I am a mummy to a beautiful one year old boy called Zachary. He was born with a PWS stain on the left side of his face. He currently hadn't started treatment yet so our journey is only just beginning.

When Zachary was born in Inverness Scotland the doctors had not seen a PWS and I felt they were unsure how to treat this. I was given information from the Internet to read. I was shocked at the lack of awareness and support for people for the UK and Europe so I set up a Facebook support group for people with a PWS in UK and contacted Linda as I wanted to help bring more awareness of Vascular birthmarks over here.

  • Great Ormond Street Hospital (GOSH)
    Mary Glover : consultant paediatric dermatologist
    Tel : 020 7405 9200 (ex 5601)
    Email :
    Diagnosis and management of : vascular malformations, haemangiomas and laser treatment
    Hilary Kennedy specialist nurse at the birthmark unit.
  • Dr Syed associate specialist
    Bristol: Royal hospital for sick children
    Dr Lindsay Shaw : consultant paediatric dermatologist
    Secretary Laura Carter : telephone 0117 3428808
    this is a service based in the UK that helps with skin camouflage make up
    More info on sturge weber syndrome
  • Facebook support groups
    Port wine stain PWS UK Vascular birthmark foundation

Alderhey Childrens Hospital Eaton Road

Beginning in January 2009, Dr Waner will be visiting Liverpool on a regular basis to see patients and perform sugeries, working in conjunction with Mr Liew Consultant plastic surgeon.

We have a large vascular birtmarks service including a multidisciplinary team and a large vascular service.

Patients may contact:

Patients Who Have Used Propranolol Study

Cause of Port Wine Stain/SWS Identified in Recent Study

Or download the pdf


Medical News: Hemangiomas Erased With Propranolol

VBF Launches Day of Awareness - We need 25 families

Thank you for your support of VBF and the VBF International Day of Awareness.

Many of you have participated every year, since its inception on May 15, 2004. Families and individuals have hosted annual bake sales; garage sales; sold stickers, bears and bracelets; celebrated a birthday by hosting a party for VBF; were featured in newspaper and magazine articles and local television news programs – the list goes on…

There is really no proper way to thank each and every one of you for support, and for raising awareness of vascular birthmarks and the associated syndromes and conditions. VBF has one amazing support network.

As you know, the downturn in the US economy has had an impact on all aspects of life, including charitable giving. Donations to VBF are down 40 percent, while the free services VBF provides to patients and families have continued to increase. For this reason, your continued support of Day of Awareness is more vital than ever.

If you haven’t participated in VBF Day of Awareness, please join the VBF family of tradition and giving by hosting an event in your community:

It’s never too early to plan your event! Visit the VBF Day of Awareness website today to register your event, or for ideas on how you can help. Here are some helpful links to get you started:

· VBF Day of Awareness website:
· “Tell Your Story”. Share your experiences with other families:

Remember, May 15 is Day of Awareness, but events can be held any time during the year.


Port Wine Stains: Clearance, Cure, and Recurrence
To Treat or Not to Treat

The following rebuttal by Dr. Stuart Nelson and Dr. Roy Geronemus was published in the New England Journal of Medicine in response to an article about the recurrence of Port Wine Stains (PWS) after pulsed dye laser treatment. At this year’s conference in Irvine, several physicians spoke about the pathology, progression and treatment of PWS. To summarize what was presented, after a PWS is treated using the pulsed dye laser, the vessels that are targeted by the laser will not necessarily come back, but rather new, deeper vessels will work their way up to the top of the skin thus making “some” stain appear. It is important to understand this because many people believe that PWS will always come back and, therefore, they should not have laser treatment. This is not true. While the laser does not “cure” the PWS, it offers the most hope for clearance, for keeping the skin from thickening and cobbling and for maintaining the best aesthetic outcome for the patient (comment by Linda Rozell-Shannon, President and Founder of the Vascular Birthmarks Foundation, 11/8/07).

Comments from Dr. Stuart Nelson and Dr. Roy Geronemus:

"We reviewed “Redarkening of Port-Wine Stains 10 Years after Pulsed-Dye-Laser Treatment” by Huikeshoven et al (NEJM 2007;356:1235-1240) with great interest and would offer our comments.

Read more here

Interview with our Greek Surgeon Dr Tombris




Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:

Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! is a new Yahoo-powered search engine, with a unique social mission. Every time you use GoodSearch, money is generated to support the mission of VBF. Just go to and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to

If you think your child has a hemangioma Click Here.
If you think you or your child has a port wine stain Click Here.
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here.
Before and after of venous malformation

Chapters of the VBF

VBF Europe
VBF Russia
VBF Spain
VBF Peru
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
VBF Poland
VBF Philippines
VBF Vietnam
VBF Israel
Sturge-Weber Syndrome Community


Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks

Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, c/o VBF Director of Information Services, PO Box 106, Latham, NY 12110.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Dr. Rosen's Vascular Birthmark Information for Parents
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.